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A basic technology-aided programme for leisure and communication of persons with advanced amyotrophic lateral sclerosis: performance and social rating.

Identifieur interne : 000A93 ( Main/Exploration ); précédent : 000A92; suivant : 000A94

A basic technology-aided programme for leisure and communication of persons with advanced amyotrophic lateral sclerosis: performance and social rating.

Auteurs : Giulio E. Lancioni [Italie] ; Nirbhay N. Singh [États-Unis] ; Mark F. O'Reilly [États-Unis] ; Jeff Sigafoos [Nouvelle-Zélande] ; Fiora D'Amico [Italie] ; Gabriele Ferlisi [Italie] ; Valeria Zullo [Italie] ; Floriana Denitto [Italie] ; Enrico Lauta [Italie] ; Crescenza Abbinante [Italie] ; Caterina V. Pesce [Italie]

Source :

RBID : pubmed:26699449

Descripteurs français

English descriptors

Abstract

PURPOSE

This study assessed (a) the impact of a technology-aided programme on the leisure and communication engagement of persons with advanced amyotrophic lateral sclerosis (ALS) and (b) the opinion of rehabilitation and care personnel regarding the programme.

METHOD

The programme's impact was assessed with four participants who were allowed to activate leisure and communication options through basic responses (e.g. knee, finger or lip movements) and microswitches. Forty-two care and health professionals rated the programme after watching video clips of persons with ALS (three of the four involved in this study and three involved in previous studies) during and outside of the programme.

RESULTS

The programme was effective with all participants. Their mean percentages of session time with independently initiated leisure and communication engagements were zero during baseline and increased to between nearly 70 and 80 during the intervention. The care and health professionals rated the technology-aided programme as beneficial for the participants' positive engagement and social image, fairly practical for daily contexts and interesting from a personal standpoint.

CONCLUSIONS

The programme might be viewed as a viable resource for persons with advanced ALS. Implications for Rehabilitation A programme characterised by versatility, simplicity and relatively low cost could be considered practically relevant for persons with ALS and their contexts. A programme that is effective in fostering participants' independent leisure and communication engagement and is positively rated by care and rehabilitation personnel is more likely to be accepted and used with consistency. Any programme directed at persons affected by ALS needs to be adapted to the persons' progressive deterioration, starting from the response and microswitch used for accessing the programme's options.


DOI: 10.3109/17483107.2015.1104561
PubMed: 26699449


Affiliations:


Links toward previous steps (curation, corpus...)


Le document en format XML

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<keywords scheme="KwdEn" xml:lang="en">
<term>Adult (MeSH)</term>
<term>Aged (MeSH)</term>
<term>Amyotrophic Lateral Sclerosis (rehabilitation)</term>
<term>Communication (MeSH)</term>
<term>Communication Aids for Disabled (MeSH)</term>
<term>Disabled Persons (rehabilitation)</term>
<term>Female (MeSH)</term>
<term>Humans (MeSH)</term>
<term>Leisure Activities (MeSH)</term>
<term>Male (MeSH)</term>
<term>Middle Aged (MeSH)</term>
<term>Music (MeSH)</term>
<term>Self-Help Devices (MeSH)</term>
<term>Severity of Illness Index (MeSH)</term>
<term>Social Participation (MeSH)</term>
<term>Television (MeSH)</term>
<term>Text Messaging (MeSH)</term>
<term>User-Computer Interface (MeSH)</term>
</keywords>
<keywords scheme="KwdFr" xml:lang="fr">
<term>Activités de loisirs (MeSH)</term>
<term>Adulte (MeSH)</term>
<term>Adulte d'âge moyen (MeSH)</term>
<term>Aides à la communication pour personnes handicapées (MeSH)</term>
<term>Communication (MeSH)</term>
<term>Dispositifs d'assistance au mouvement (MeSH)</term>
<term>Envoi de messages textuels (MeSH)</term>
<term>Femelle (MeSH)</term>
<term>Humains (MeSH)</term>
<term>Indice de gravité de la maladie (MeSH)</term>
<term>Interface utilisateur (MeSH)</term>
<term>Musique (MeSH)</term>
<term>Mâle (MeSH)</term>
<term>Participation sociale (MeSH)</term>
<term>Personnes handicapées (rééducation et réadaptation)</term>
<term>Sclérose latérale amyotrophique (rééducation et réadaptation)</term>
<term>Sujet âgé (MeSH)</term>
<term>Télévision (MeSH)</term>
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<term>Amyotrophic Lateral Sclerosis</term>
<term>Disabled Persons</term>
</keywords>
<keywords scheme="MESH" qualifier="rééducation et réadaptation" xml:lang="fr">
<term>Personnes handicapées</term>
<term>Sclérose latérale amyotrophique</term>
</keywords>
<keywords scheme="MESH" xml:lang="en">
<term>Adult</term>
<term>Aged</term>
<term>Communication</term>
<term>Communication Aids for Disabled</term>
<term>Female</term>
<term>Humans</term>
<term>Leisure Activities</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Music</term>
<term>Self-Help Devices</term>
<term>Severity of Illness Index</term>
<term>Social Participation</term>
<term>Television</term>
<term>Text Messaging</term>
<term>User-Computer Interface</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr">
<term>Activités de loisirs</term>
<term>Adulte</term>
<term>Adulte d'âge moyen</term>
<term>Aides à la communication pour personnes handicapées</term>
<term>Communication</term>
<term>Dispositifs d'assistance au mouvement</term>
<term>Envoi de messages textuels</term>
<term>Femelle</term>
<term>Humains</term>
<term>Indice de gravité de la maladie</term>
<term>Interface utilisateur</term>
<term>Musique</term>
<term>Mâle</term>
<term>Participation sociale</term>
<term>Sujet âgé</term>
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<div type="abstract" xml:lang="en">
<p>
<b>PURPOSE</b>
</p>
<p>This study assessed (a) the impact of a technology-aided programme on the leisure and communication engagement of persons with advanced amyotrophic lateral sclerosis (ALS) and (b) the opinion of rehabilitation and care personnel regarding the programme.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>METHOD</b>
</p>
<p>The programme's impact was assessed with four participants who were allowed to activate leisure and communication options through basic responses (e.g. knee, finger or lip movements) and microswitches. Forty-two care and health professionals rated the programme after watching video clips of persons with ALS (three of the four involved in this study and three involved in previous studies) during and outside of the programme.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>RESULTS</b>
</p>
<p>The programme was effective with all participants. Their mean percentages of session time with independently initiated leisure and communication engagements were zero during baseline and increased to between nearly 70 and 80 during the intervention. The care and health professionals rated the technology-aided programme as beneficial for the participants' positive engagement and social image, fairly practical for daily contexts and interesting from a personal standpoint.</p>
</div>
<div type="abstract" xml:lang="en">
<p>
<b>CONCLUSIONS</b>
</p>
<p>The programme might be viewed as a viable resource for persons with advanced ALS. Implications for Rehabilitation A programme characterised by versatility, simplicity and relatively low cost could be considered practically relevant for persons with ALS and their contexts. A programme that is effective in fostering participants' independent leisure and communication engagement and is positively rated by care and rehabilitation personnel is more likely to be accepted and used with consistency. Any programme directed at persons affected by ALS needs to be adapted to the persons' progressive deterioration, starting from the response and microswitch used for accessing the programme's options.</p>
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<Day>12</Day>
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<Year>2017</Year>
<Month>12</Month>
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<ISSN IssnType="Electronic">1748-3115</ISSN>
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<Title>Disability and rehabilitation. Assistive technology</Title>
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<AbstractText Label="PURPOSE">This study assessed (a) the impact of a technology-aided programme on the leisure and communication engagement of persons with advanced amyotrophic lateral sclerosis (ALS) and (b) the opinion of rehabilitation and care personnel regarding the programme.</AbstractText>
<AbstractText Label="METHOD">The programme's impact was assessed with four participants who were allowed to activate leisure and communication options through basic responses (e.g. knee, finger or lip movements) and microswitches. Forty-two care and health professionals rated the programme after watching video clips of persons with ALS (three of the four involved in this study and three involved in previous studies) during and outside of the programme.</AbstractText>
<AbstractText Label="RESULTS">The programme was effective with all participants. Their mean percentages of session time with independently initiated leisure and communication engagements were zero during baseline and increased to between nearly 70 and 80 during the intervention. The care and health professionals rated the technology-aided programme as beneficial for the participants' positive engagement and social image, fairly practical for daily contexts and interesting from a personal standpoint.</AbstractText>
<AbstractText Label="CONCLUSIONS">The programme might be viewed as a viable resource for persons with advanced ALS. Implications for Rehabilitation A programme characterised by versatility, simplicity and relatively low cost could be considered practically relevant for persons with ALS and their contexts. A programme that is effective in fostering participants' independent leisure and communication engagement and is positively rated by care and rehabilitation personnel is more likely to be accepted and used with consistency. Any programme directed at persons affected by ALS needs to be adapted to the persons' progressive deterioration, starting from the response and microswitch used for accessing the programme's options.</AbstractText>
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